Live for Today

Our nephew’s little boy, Cooper has a new tumor.  As you can imagine this is devastating news to all of us.

Cooper was three years old last August.  His first brain tumor was discovered a year before that, right around his second birthday.

Justin and Elise have worked tirelessly ever since the first tumor was discovered to provide the very best care and treatment possible for Coop. And the witness of faith these parents have been to all who know them or just read their posts on Cooper’s Carepage is unbelievable.

Here is an excerpt from the latest post Justin wrote on the Carepage:

So despite all the emotions and feelings of the past week we are now in the mode of taking the next steps required of Cooper’s treatment plan. As a result, next week Cooper will undergo a surgery that will insert a port into his brain that will allow a new chemo formulation to be applied directly to the tumor location, taking away the challenge of trying to pass the blood brain barrier that protects all our brains but also makes it difficult for chemo to get to the “bad” cells. Our hope in this plan is to stabilize this aggressive tumor and give us as much time as possible, and keep the doors and options open for medical intervention and miracles.

We are also trying to enjoy every moment as they come. The great, although sometimes difficult thing is that Cooper, since leaving the hospital, has shown more energy and clear and coherent thoughts and speech then we have seen in many months. He is happy and wants to sing, draw, play with his sister and gives lots of laughs and smiles. In fact we no longer face the issue of Cooper sleeping long hours during the day, but instead he struggles sleeping through the night, most likely due to the steroids they have him on to stop any swelling that is taking place in his brain. So enjoying those every moment often are coming at 1:00 am when Super Cooper is in rare form and ready to play, draw, sing or eat….we will take them whenever they come!

May God bless them with courage, faith and peace.  And may this remind all of us to appreciate those we love today, because none of us know what tomorrow brings.

10 Responses to Live for Today

  1. Linda says:

    I had read this on the Carepage, and I was charmed at the mental image of the parents rousing themselves in the middle of the night to play with Cooper because he was awake and felt like playing. It shows how they treasure every moment with him. The little guy has had to endure a lot, but God certainly blessed him with the right parents to face the challenges with him. I have such admiration for them all.

  2. Sandra says:

    I totally agree, Linda.

  3. C. Beth says:

    It brings tears to my eyes. God gives such amazing strength to parents like Cooper’s. I deeply hope I’m never in the situation to need that much strength for my kids!

  4. Sandra says:

    I hope that for your too, Beth. It has been very painful to see them go through this. But, I always have to add, Cooper in his three short years (and his parents) has touched so many lives — in that way he has had a long, meaningful life even in just three years.

  5. Amy Ostrowski says:

    I will put them on our prayer list.

  6. Hilary says:

    Oh that’s heart wrenching to hear this news, Sandra. I can’t imagine how difficult this is for everyone. I’ll keep Super Cooper and his family in my very best thoughts. Hugs to you.

  7. Sandra says:

    Thank you, Amy.

    Hilary — They are truly inspiring in how they are handling such a heart wrenching situation. Thank you for your hugs and kind thoughts.

  8. Carla says:

    God bless that precious boy and his family.

    Adding them back to my prayer list.

  9. This is indeed devastating news. I’m trying to keep my tears from falling down my chicks, because I am at work. But I am really sorry for everything that has happened to Cooper. I truly hope he will be ok. My best thoughts are out to him and his family.

  10. Sandra says:

    Thank you, Carla. We appreciate your prayers.

    PS — Thank you for your words of encouragement.

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